This week I am prepping for yet another trip to Cincinnati Children's hospital to have doctors peering at Joe looking for still more previously undetected defects. Honestly, this poor baby has been under the microscope since our 18-week ultrasound. Just like looking at the word "usual" for too long, anything begins to look wrong if you stare at it long enough.
What we are looking for this time is whether the growth on his pituitary gland has grown, and if it has, then find out what kind of cells they are. On his list of stuff-to-do: Barium swallow study, hearing test, MRI of brain, Pulmonology consult, Broncoscopy, and I think that's it. All I know is that I just don't have time to deal with a brain tumor. Nursing school starts in less than a month, for pete's sake!
Joe has used Cincinnati Children's for almost all of his care since he was five months old. He sees Dr. Michael Rutter for his ENT needs (such as a crico-tracheal resection; laryngotracheal resection with rib graft (LTP, LTR); assorted broncs; tonsils/adenoids; and a aortopexy last summer {not done by Dr. Rutter, but by Dr. Alonzo, a heart surgeon there}). If you ever have a kid with a massively screwed up airway, and want a good laugh at the same time, Dr. Rutter's your man. Get thee to Cincinnati by hook or by crook. They're worth it.
However, while I love it in Cincinnati, I am looking forward to Joe being released from Dr. Rutter's care. I am sick of sitting in the little room hearing about more bad stuff just waiting to get fixed. Last time, Dr. R. threw out the term "Chiari Malformation" as a possible explanation for Joe's sleep apneas. Oh, thanks, let me worry about his spinal cord now. So here's hoping I get the "Have a good life" speech this time.
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